Every day Kody is showing a little more progress. Two a.m. Friday morning they clamped the ecmo machine to see how his heart and lungs were doing. His oxygen levels stayed up for five minutes before they dropped. Then they are trying a different medicine for his lungs after that improvement. Before lunch they tried again and he stayed off for 25 minutes before it started dropping. So now the plan is to increase the ventilator settings and try to bring him off the ecmo machine. They are really wanting to get his chest closed because of the risk of the infection. The doctors are pleased with his heart and working hard on getting his lungs to open up. I'm so thankful for the knowledge the doctors and nurses have to be able to take care of him.
This morning when I went in they showed me the oneise that he had on. The night nurse had given him a bath and put that on him. He's almost three weeks old and that's the first outfit he's had on. Just keep praying that he'll be off everything and we can finally hold him again.
Love all you guys and appreciate everything you've done for us.
About Me
- Jamie Jones
- Monticello, KY, United States
- Hi! For those of you that don't know me I'm Jamie Jones and I've been married to Marc for six years. We have a four year old daughter Katie and expecting a son Kody! We are scheduled for delivery June 22, 2009 I've always been a private person and didn't want my personal life posted for everyone to read. But the other night I came across a blog that really made me think different. A few months ago we found out our son is going to be born with a heart defect. So researching trying to find out as much as I can I found a family that is going through the same thing and it has really touched my heart. Their outlook and faith in God was really what I needed that night. I feel like I was lead to their page for a reason. I've thought about them often today and decided to post my own blog. We have a lot of family and friends that are praying for us and this will help keep them posted.
Saturday, July 11, 2009
Thursday, July 9, 2009
One More Day
I know several people are watching for updates. I don't get a chance to post updates every night. Today was a little better they clamped the echo machine to get a trial run to see how things looked. Kody's oxygen levels stayed up for one and half minutes before it started droping and the day before it dropped as soon as they clamped him off. They really think that tomorrow he'll have a better chance coming off the ecmo. They have been talking about closing his chest because the longer that he's open the higher risk of getting an infection. So they have been weighing that out with the other options. If they close his chest before they take him off the ecmo they'll have to move the connection to his neck. Which I really hate to have that happen. So we're praying they'll be able to take him off it tomorrow.
This has been an emotional roller coaster ride. There have been days when we left that we were so down in the dumps. This evening I feel a lot better and I really feel like tomorrow will be a good day. They did reposition him with the ventilator before we left and he looked so much better. The nurse said that his color was improving because his lungs were working more.
I really have to brag on the staff at the hospital. They have really done a great job and Kody has his own nurse around the clock that just takes care of him. Then there is someone that sits and watches the ecmo machine around the clock too. Not to mention the doctors that come in too. They have a pediatric doctor that stays in the PICU at all times too. When they try to bring him off the ecmo there is a room full of staff. They all answer any question we have and if they ask us to sit in the waiting room they always come out to talk to us. So we really don't feel like we are left in the dark.
Today Marc went and got Katie. We haven't seen her since Sunday and really missed her. Plus she helps take our mind off things and pass time by too. I'm so thankful that we have Eugene and Wilma to help take care of her. Plus all the other friends and family that have offered to help out with her. We took her to GattiTown to eat supper and play. It was so nice to see her so happy and excited to play. Hopefully we can be all home together soon.
Please keep us in your prayers. We all are struggling through this together. It's hard seeing your baby so sick and nothing that you can do to help. Katie is having a hard time too. She often cries to see her baby brother. I'll be glad to get this all behind us. I know God answers prayers and he has been our strength to get us this far.
We appreciate every thing that everyone has done for us. I can't express enough how much it means to us. If I don't repsond to your emails or comments doesn't mean that we aren't reading them. By the time we get in it's so late that I don't have time to get everything done. But it's nice to know that everyone is thinking of us. God has blessed us with a wonderful circle of friends and family. I don't know what we would do without you all.
This has been an emotional roller coaster ride. There have been days when we left that we were so down in the dumps. This evening I feel a lot better and I really feel like tomorrow will be a good day. They did reposition him with the ventilator before we left and he looked so much better. The nurse said that his color was improving because his lungs were working more.
I really have to brag on the staff at the hospital. They have really done a great job and Kody has his own nurse around the clock that just takes care of him. Then there is someone that sits and watches the ecmo machine around the clock too. Not to mention the doctors that come in too. They have a pediatric doctor that stays in the PICU at all times too. When they try to bring him off the ecmo there is a room full of staff. They all answer any question we have and if they ask us to sit in the waiting room they always come out to talk to us. So we really don't feel like we are left in the dark.
Today Marc went and got Katie. We haven't seen her since Sunday and really missed her. Plus she helps take our mind off things and pass time by too. I'm so thankful that we have Eugene and Wilma to help take care of her. Plus all the other friends and family that have offered to help out with her. We took her to GattiTown to eat supper and play. It was so nice to see her so happy and excited to play. Hopefully we can be all home together soon.
Please keep us in your prayers. We all are struggling through this together. It's hard seeing your baby so sick and nothing that you can do to help. Katie is having a hard time too. She often cries to see her baby brother. I'll be glad to get this all behind us. I know God answers prayers and he has been our strength to get us this far.
We appreciate every thing that everyone has done for us. I can't express enough how much it means to us. If I don't repsond to your emails or comments doesn't mean that we aren't reading them. By the time we get in it's so late that I don't have time to get everything done. But it's nice to know that everyone is thinking of us. God has blessed us with a wonderful circle of friends and family. I don't know what we would do without you all.
Tuesday, July 7, 2009
Last time I posted a blog we were hoping to get Kody off the ecmo machine. Monday they found out his right lung had collapsed and didn't take him off the machine. They ran a scope down his lung and found some blood clots. Through out the night they suctioned his lungs and had him on some medicine to help clear his lungs. Today his lung looked better and tried to bring him off the machine again. His heart looked great while he was off the machine but his lung still wasn't working the way it should. His blood pressure and his oxygen levels both started to drop so they put him back on the machine. Before we left tonight they did a bronchoscopy and didn't see any thing preventing his lungs to open. They did put him on a ventilator to help the lung expand.
They seem to have high hopes to get him off the machine tomorrow. Hopefully we'll have success. Just keep us in your prayers that everything will work out.
We can't tell you enough how much we appreciate everyone's kindness right now. God has blessed us with a wonderful family and circle of friends.
They seem to have high hopes to get him off the machine tomorrow. Hopefully we'll have success. Just keep us in your prayers that everything will work out.
We can't tell you enough how much we appreciate everyone's kindness right now. God has blessed us with a wonderful family and circle of friends.